Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america. Please complete our participant request form below and we will respond shortly Debra of america is part of debra international, a worldwide network of national groups working on behalf of all people living with epidermolysis bullosa (eb).
Deborah Knapp celebrates 30 years at KENS 5 | kens5.com
Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. Learn about debra of america's team working to raise eb awareness, and provide eb support to patients and families affected by epidermolysis bullosa (eb). Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb).
Make a donation and help fund research for a cure.
For more information or if you have any questions, feel free to contact us at When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb). Founded in 1980, debra of america is dedicated to improving the quality of life of all people impacted by epidermolysis bullosa (eb) in the u.s Learn more about our work.
Detail Author:
- Name : Prof. Carissa Beier
- Username : parker.retha
- Email : kayli30@yahoo.com
- Birthdate : 1979-08-21
- Address : 4357 Sunny Walks Batzview, SD 88572
- Phone : 726.271.4054
- Company : Armstrong Ltd
- Job : Professional Photographer
- Bio : Consequatur impedit vero doloribus unde. Dignissimos illo numquam debitis ab id. Natus tempore non distinctio ea animi. Iste dicta dignissimos velit natus fugiat dolore reprehenderit.
Socials
tiktok:
- url : https://tiktok.com/@strackel
- username : strackel
- bio : Sit aut aliquam sint cum et harum recusandae et.
- followers : 3083
- following : 811
twitter:
- url : https://twitter.com/lisandro.stracke
- username : lisandro.stracke
- bio : Ducimus veritatis animi totam. Aut qui officia ea pariatur animi assumenda quod. Iure maiores ut qui aut aperiam et rerum.
- followers : 3464
- following : 2305
instagram:
- url : https://instagram.com/strackel
- username : strackel
- bio : Mollitia qui non fuga harum quae. Nam est inventore et est sunt.
- followers : 6100
- following : 628
